The front page of the Vitality section of today's
Reporter Herald immediately caught my eye. The headline read
Mystery illness with a caption underneath stating, "Toddler suffered from recurring fever." The article told of a child who had frequent high fevers, swollen glands around the neck and fever blisters in her mouth. Her father, an ENT, researched her symptoms on line one night and found something called Marshall syndrome or
PFAPA. Since diagnosing and having his daughter treated, he has gone on to help 60 children with this ailment.
When my oldest was about 4 years old, she seemed to be sick at least once a month - high fever, sore throat, swollen glands. In the beginning, I would take her to the pediatrician only to hear those dreadful words, "It's a virus. She will just have to get over it." After a while, I stopped going to the doctor and treated her at home. I knew the drill: Leave a low grade fever alone, it fights the infection, treat the high fevers with alternating doses of ibuprofen and acetaminophen, give her popsicles for her throat, and do whatever is possible to keep her comfortable.
After about 6 months of this, I contacted an
ENT to see if he had any insight. While he believed a tonsillectomy could help, he cautioned that since she had rarely been diagnosed with strep, the insurance company probably would not cover it. We decided to monitor her for a few months and see if we could diagnose enough cases to warrant the procedure. Well, 1 month later, she was so miserable that I called the insurance company to see what I could find out. I explained how my five year old was almost hospitalized for dehydration because the fever blisters in her mouth were too painful for her to want to drink. I told them that no one was really sure what the illness was and various antibiotics had done little more than let us know she is allergic to septra. To my surprise, the woman was very helpful! She said if the doctor thought it would help, they would cover it even though she did not have a history of diagnosed strep.
Within a week, she was in and out of the hospital. Ever since then, she has suffered from little more than a very infrequent cold. Up until this year that is... This year she seems to have been sick more often than healthy - nothing as awful as when she was little, just annoying colds and sore throats that won't leave her alone for very long. I keep hoping it's just her body adjusting to less sleep - she loves her sleep and a more challenging school work load meant longer study hours this last school year. After reading this article though, I will keep a closer watch for the next few months. You see, it indicated at the end that children with this mysterious illness may have a hypersensitive immune system.
Ten years ago, I knew my daughter didn't just have a virus she would get over and now her body may be trying to tell us all something else. My daughter and I will follow our instincts to make sure everything is OK. After all, who knows us better than we do?